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Understanding Dementia and Alzheimer’s for Family Carers

Live-in Carer talking with elderly lady smiling

A Positive Approach to Live-in Care

Here at Access Care, we take lots of pride in our commitment to supporting our lovely home care clients, many of whom are living with the challenges of dementia and Alzheimer’s. 

Over the years, many of our live-in care clients have lived bravely with these conditions, and we have been privileged to work alongside them. Our dedicated and professional home carers play a key role in supporting their live-in care clients. They work tirelessly to support them and help them to keep their independence and dignity.

In our next blog, we thought it would be a good idea to take the time to explore what dementia and Alzheimer’s are, shedding light on their different intricacies, symptoms, and the positive strategies that loved ones can use to enhance the quality of life for their beloved relative who is living with the condition.


Access Care Explains: What is Dementia?

The Symptoms of Dementia

The term dementia covers a broad range of cognitive issues that can have a major impact on a person’s daily life and overall well-being. 

Early signs of dementia often include memory loss, like trouble remembering recent events or conversations. As dementia progresses, people might struggle with problem-solving, reasoning, and planning, which can lead to confusion about time and place. 

Other common symptoms of dementia are mood or behaviour changes, difficulty with completing familiar and routine tasks, and withdrawing from social interactions. 

By spotting these signs early on, it can really help in getting the right support and care in place for your loved one. Understanding these symptoms and signs helps in early diagnosis and promotes a caring approach that focuses on the well-being of those living with dementia.


The Causes of Dementia 

Dementia is caused by a variety of different factors that affect the brain which then leads to cognitive decline. The most common cause of dementia is Alzheimer’s disease, which results from the buildup of amyloid plaques and tau tangles in the brain, which disrupts the communication between nerve cells. 


Some examples of other forms of dementia include; vascular dementia, which starts due to reduced blood flow to the brain due to strokes or small vessel disease. As well as that, conditions like Lewy body dementia and frontotemporal dementia are caused by specific types of protein deposits and degeneration of certain brain areas, respectively. 

Things like age, genetics, and lifestyle choices—like cardiovascular health—can have an impact on the risk of developing dementia. Understanding these causes can help families and live-in carers identify risk factors and implement preventative strategies wherever possible.


The Early Signs to Watch Out For 

Recognising the early signs of dementia is key for timely intervention and help. Families and live-in carers should be able to look out for any changes in memory, particularly confusion about recent events or losing items frequently. 

People with dementia may show difficulty in planning or organising tasks, struggle to follow conversations, or lose their train of thought easily. Any changes in personality or mood, such as becoming more anxious or irritable, or withdrawal from social activities, can also be a sign of cognitive decline. 

By noticing these signs early, it can help families to take action, get the right medical advice, and start supportive strategies to keep their loved one's quality of life high.


The Statistics on Dementia in the UK

Dementia is a big public health issue in the UK, affecting so many people from all walks of life. Right now, over 900,000 people in the UK are living with the condition, and this number could go over 1.6 million by 2040. 


Alzheimer’s disease makes up nearly two-thirds of these cases, so raising awareness is so important. Dementia tends to affect older adults, about 1 in 14 people aged 65 and over have dementia. 


The financial impact is huge too, with the cost of dementia care in the UK expected to hit £34 billion a year by 2025. These numbers really highlight the need and the importance of early detection, compassionate care, and support for those affected by the condition and their families.


Understanding Alzheimer’s Disease

What Sets Alzheimer’s Disease Apart from Other Forms of Dementia? 

Alzheimer's disease is known for its gradual decline in memory and cognitive function, which sets it apart from other types of dementia due to its unique and specific features. The most noticeable signs of Alzheimer's disease are amyloid plaques and tau tangles in the brain, which mess up neuron communication and causes the cells to die over time. This usually begins in the hippocampus, which is the part of the brain that forms new memories, leading to forgetfulness in the early stages. 


Unlike some other forms of dementia, Alzheimer's disease often follows a more predictable pattern, going from mild cognitive issues to more severe problems with language, spatial awareness, and daily activities. Memory loss is often more severe with Alzheimer's disease, so it is crucial  for families to understand its specifics to ensure that they can get the right care and support for their loved one suffering from the condition.


The Brain and Alzheimer’s Disease

Alzheimer's disease has a massive impact on the structure and function of the brain, leading to profound cognitive decline. As the disease progresses, the neurons gradually degenerate, particularly in areas associated with memory and learning, such as the hippocampus and the cerebral cortex. The buildup of amyloid plaques and tau tangles not only affects communication between neurons but also triggers inflammation and further neuronal damage. This disruptive process often leads to the characteristic memory loss, confusion, and changes in behaviour associated with Alzheimer's. 


Understanding how Alzheimer’s disease affects brain chemistry and structure is so key for families and home carers, as it gives them insight into the daily challenges faced by their loved ones. This knowledge can help them with compassion and patience, enabling family carers or home carers to adopt more effective strategies and techniques tailored to the unique needs of the person living with Alzheimer’s disease.


The Key Symptoms of Alzheimer’s

The symptoms of Alzheimer’s disease can really vary from person to person, but several key indicators are commonly seen. 


Early signs can often include persistent memory loss, in particular forgetting recently learned information or important dates. Alongside memory issues, people living with Alzheimer’s disease may also find it increasingly hard to perform familiar tasks, such as balancing a chequebook or following a recipe. 


Language problems also become apparent, with affected people struggling to find the right words, repeating themselves, or having trouble keeping up with conversations. 

Changes in mood and behaviour are also key symptoms, with people experiencing increased confusion, anxiety, or agitation. As Alzheimer's progresses, disorientation and difficulty recognising familiar places or people can happen, highlighting the importance of continued support and understanding from home carers and family members. 


By being aware of these symptoms it means proactive interventions can be made early on, helping to create a compassionate and supportive environment for those living with the challenges of Alzheimer’s.


The Statistics on Alzheimer’s Disease in the UK 

Alzheimer's disease is a very big public health concern in the UK. It affects approximately 850,000 individuals. It is estimated that by 2025, the number of those affected will rise to over one million, highlighting the growing impact of the disease amidst an ageing population. 


Alzheimer’s disease accounts for around 60-70% of all dementia cases in the UK, which makes it the most common form of dementia. According to the Alzheimer's Society, around 225,000 people will develop dementia this year, which means one person every three minutes. 


The financial impact of Alzheimer’s is quite considerable, with the costs estimated to go over £26 billion annually, encompassing health and social care expenses as well as things like home care and informal care provided by families. 

These statistics highlight the urgent need for increased awareness of the condition, research funding, and improved support systems for those living with Alzheimer's and their carers.


The Benefits of Knowing the Difference

Tailoring Care Approaches 

Understanding the unique traits of Alzheimer’s is key for providing the right care (including live-in care). A person-centred approach has a focus on the person’s preferences, routines, and abilities, which helps them to maintain dignity and their independence. 


Changing ways of communicating to handle memory loss and confusion can massively improve interactions; simple sentences, eye contact, and validating emotions are also key. A structured environment with familiar items and visual cues can help to ease feelings of anxiety and confusion. Trying to include cognitive and physical activities that match the person's interests not only helps to keep their mind active but also boosts their overall well-being. 


By using these personalised care strategies, family members and home carers can help the  person’s identity and quality of life, while also easing some of the family's burdens.


Enhancing Effective Communication 

Effective communication is so key when caring for people with Alzheimer’s disease, be it as a family carer or a live-in carer.  This is because it not only helps understanding but also can help to build a more supportive environment. 


Using clear and simple language can help the person living with dementia or Alzheimer’s to understand; family members and home carers should try their best to speak in short, concise sentences while avoiding complex words and phrases. 


As well as that non-verbal cues, things like facial expressions and body language, play a crucial role in conveying messages. Keeping a calm and friendly tone can help to lessen their anxiety and promote a sense of safety. It is also helpful to give the person lots of time to respond, as rushing may lead them to feel frustrated or have feelings of inadequacy. 


Planning for the Future

Planning for the future is super important when looking after someone with Alzheimer’s disease. It helps both the person living with the condition and their family get ready for what's ahead. Setting up legal stuff, like power of attorney is key for making decisions about medical care and money matters. Talking openly about future care preferences, end-of-life wishes, and possible living arrangements can make things clearer and more comforting, helping families face the future with more confidence. 


Looking into support services—like live-in care, adult day care, short term respite care, and community programmes—can help to ease a carer’s stress and boost everyone's well-being. 


Regularly updating care solutions as things change can help to make sure that all of their needs and preferences are met. By being organised and planning ahead, families can create a stable, supportive, and empathetic environment, improving the life for both those with Alzheimer’s disease and their family carers.


How Live-In Care Can Support Your Loved One

The Role of a Live-In Carer


A live-in carer provides 24 hour live-in care support that is tailored to the specific needs of their home care client. Whether you opt for in-home dementia care or general home care, a live-in carer helps you to make sure that your loved one receives constant help, support and companion care that allows them to stay in the comfort of their own home and maintain their independence.


Personalised and Compassionate Live-in Care

Live-in care is a unique and personal form of care that focuses on the live-in care client’s specific needs and preferences. This includes support with daily activities, medication management, meal preparation, and providing emotional support. Having a familiar face around can really help to improve the quality of life for someone with dementia or Alzheimer’s.


Easing the Burden on Family Carers

Having a live-in carer can ease the burden on their loved ones, by providing peace of mind that their relative is being cared for by a professional. This arrangement means family carers are able to take necessary breaks, focus on their own health and wellbeing, and spend quality time with their loved one without the constant stress of caring.


More Ways Live-In Care Can Support Your Loved One

Engaging in Meaningful Activities and Hobbies

Live-in carers can encourage participation in hobbies and activities that encourage cognitive engagement. Whether it is having a go at hobbies such as gardening, crafting, or reading aloud, tailored activities can stimulate the mind and create a sense of purpose. 

Not only that, but sharing these experiences can strengthen the bond between the live-in carer and their live-in care client, enhancing overall well-being.


Encouraging and Organising Social Interaction 

Isolation can be a big concern for people living with dementia and Alzheimer’s disease. Live-in carers can encourage social interactions by arranging visits with friends and family, taking part in community events, or even connecting with support groups. 

These social connections can help to combat feelings of isolation, improve mood, and maintain a sense of community for the person being cared for.


Monitoring Health and Well-being 

By being there all the time, live-in carers are well-positioned to monitor physical and mental health changes in their live-in carer client. They can track medication schedules, look out for any changes in behaviour, and make sure of timely medical assistance when necessary. This proactive approach can lead to early detection of any complications or health issues, ultimately supporting a healthier, more stable lifestyle.


Who We Are at Access Care

At Access Care, we are a live-in carer agency that is dedicated to enhancing the lives of all of our live-in care clients, including those living with dementia, through compassionate and personalised live-in care. 


Our team of highly trained and experienced live-in carers understand the specific challenges faced by both those living with these conditions and their loved ones. We prioritise building strong relationships with our live-in care clients and their families, based on trust, empathy, and respect. 

Our approach to home care is centred around the live-in care client, making sure that we tailor our care solutions to meet the specific needs and preferences of our live-in care clients. 


With a commitment to promoting independence and dignity, we aim to create a supportive environment that helps to build up our live-in care client’s emotional well-being.


At Access Care, we believe that everyone deserves compassionate live-in care in the comfort of their own home.


Access Care’s Practical Tips for Family Carers


Below is a list of practical tips for family carers, compiled from our experienced live-in carers:

Creating a Safe Home Environment

Make sure that the home is safe by removing fall hazards, installing grab bars, and having good lighting. Take precautions such as installing door alarms and keeping a recent photo of your loved one in case they do go wandering.


Establishing Consistent Routines

By having a routine this can help to provide a sense of stability and predictability for a person living with dementia or Alzheimer’s. Try to maintain regular meal times, activities, and sleep. Consistency can really help to lessen confusion and anxiety.


Engaging in Activities and Hobbies

Try to encourage your loved one to get involved with meaningful activities and hobbies that they enjoy. This could be anything from listening to music, gardening, or simple crafts. Activities and hobbies help to keep the mind active and provide a sense of accomplishment, and enhance overall wellbeing.


The Importance of Community and Support

Joining Support Groups

Connecting with others who are going through similar experiences can be really comforting. Support groups give you a space to share advice, stories, and emotional support. LOts of organisations offer both in-person and online support groups for family carers and loved ones.


Accessing Professional Help

Do not hesitate to seek out professional help when you or your loved one needs it. This could be from healthcare providers, social workers, or professional live-in carers. Organisations like Access Care provide help, resources and services to help manage the challenges of caring for someone with dementia or Alzheimer’s.


Utilising Technology

Technology can be a great ally in caring, whether you are a family carer or a live-in carer. You could use apps and devices to monitor your loved one’s health, remind them of daily tasks, and even provide entertainment and cognitive stimulation. From medication reminders to GPS trackers, modern technology can really help to ease caring responsibilities.


Future Planning and Legal Considerations

Setting Up Legal Documents

It is key to have legal documents in place early on. This includes things like power of attorney, living wills, and healthcare directives. These documents make sure that your loved one’s wishes are respected and that you have the legal authority to make any decisions on their behalf if and when the time comes.


Financial Planning

Looking after someone with dementia or Alzheimer’s can be costly. It is a good idea to work with a financial advisor to plan for future expenses, including medical care, short term respite care, home care, or live-in care. Proper financial planning can lessen stress and make sure that your loved one receives the very best possible care.


Long-Term Care Options

Try to explore long-term care options early on. This includes understanding the costs and benefits of live-in care and residential care home facilities. Knowing the options that are available allows you to make informed decisions that best suit your loved one’s needs and unique preferences.


Remember You Aren’t Alone in Your Care Journey

Understanding the differences between dementia and Alzheimer's is really crucial for providing the very best care for your loved one. 


With knowledge under your belt and the right support, you can help to create a nurturing and supportive environment that enhances your loved one’s quality of life. 

Remember, you’re not alone on this care journey. At Access Care, we are here to provide expert personalised and compassionate live-in care, and a community of support. 


If you are ready to explore how live-in care can benefit your family, please do not hesitate to reach out to us today. You can reach us by telephone on 01264 319 399, or we are available to be contacted by email at hello@access-care.co.uk. Either way, one of our friendly team members are ready and waiting to talk to you about your live-in care needs.


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